Well having a child with special need is very challenging once you think your out of the woods you seem to be back in the forest. We have gone as far as we can with CCF and we are grateful for getting us through the first leg of this race, when you have a sick child there is nothing that you would not do to find a cure and solution and the first part of that is faith. We are heading to Cincinnati Children's Hospital to have a second opinion with a world renowned ventricle specialist. Kym Ella still only has 19% profusion of the left side of the heart she has total blockage of the left coronary...God is faithful in holding her heart in his hand sustaining her. Everyday I declare she is healed because she is and thank God for medical treatments that aide in that care. CCH is an another option for her, along with the other hospitals that i sent her records to conquer this rare condition called ALCAPA. God Bless and hug your child today
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Today is a good day
Kym Ella's home nurse came out and examined her I wish all appointments could be home nurse, we are in preparation of taking our trip to Cincinnati; also working on the fundraiser for the parents of children of ALCAPA it is decided that we are going to do an all you can eat picnic and baseball game later in July. I have learned that when you are going through a situation it is best to have people around you that are simply friends with no expectation of family, no one can honestly know what you are going through and individuals grow weary of listening and supporting. This is one of the primary reasons of starting this foundation where like minds in a situation can share, cry express with others that are facing the same thing. It takes a rare individual to show empathy and relate to a situation that you are no going through and be there and support that person. When your at your child beside in the midnight hour not knowing what the morning will bring and people are asking how are you doing? I can testify that God is a comforter, that he does sustain you that his grace is enough-sufficient to get you through another day, while the rest of the world is moving on living their lives. I have learned so much in this situation and the most important is that if no one ever extends a hand to you Gods grace and mercy is real and he will give you peace beyond your understanding. The Mommy |